This Blog Was Born from Love for My Mother
I’m Jaime William Mostacero Baca, son and caregiver of Martha Yrene, who lived with Progressive Supranuclear Palsy (PSP). PSP MY carries her initials: it’s my way of letting her keep helping other families.
Our Story
My mother was diagnosed with PSP in 2022, although her first symptoms had appeared years earlier. Like many families, at first nobody really knew what it was. She was treated as if it were Parkinson’s, and there was very little information in Spanish.
During those years I was her caregiver. I learned the hard way about falls, choking, mucus, feeding tubes, pressure sores and sleepless nights. I also learned that caregivers grieve while their loved one is still by their side.
On June 1, 2025, I started this blog to share what we were living through. My mother passed away on July 8, 2025. I decided to keep writing, because I don’t want her remembered for the disease, but for everything her story can do for others.
What You’ll Find Here
What we lived through at home, told honestly, so you don’t feel alone.
Home care, paperwork and questions to bring to medical appointments.
Laws, support and research on PSP, always linked to the official source.
Logbooks and sheets to organize medications, meals and symptoms.
How I Write
- I’m not a doctor. I write as a son and caregiver. Nothing I publish replaces advice from a health professional.
- I don’t make up data. When I write about laws, studies or figures, I link the official source.
- I don’t promise cures. PSP has no cure yet. I share what brought us comfort and calm.
- I correct my mistakes. If you find something wrong, write to me and I’ll review it.
Transparency: How This Blog Is Supported
Running PSP MY has costs: domain, hosting and many hours of research and writing. That’s why the blog may show Google ads and includes Amazon affiliate links. If you buy through them, I receive a small commission at no extra cost to you. I also sell my own caregiver books, the Brave Hands / Manos Valientes series.
I will never ask you to click on an ad. I only recommend products we used at home or that I know, and I say so clearly. Everything raised helps me keep researching and writing about PSP.
My Dream for PSP MY
That this blog becomes a Latin American PSP association, like those in other countries: a place where families, doctors and young researchers come together so no caregiver walks alone.
You can also see all my books on my Amazon author page.